RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @JadeBarclay: In all the whirlwind about prevalence, the info about multisystemic impact has been overlooked. That's such big, beautiful…
@Nutzlastemu @casusebastian @MSchmutzkind Definitiv, ja. Und es wird ja auch als "selten" angesehen, auch wenn es vermutlich eher "selten diagnostiziert" ist. Dass die diagnostischen Konstrukte für z.B. psychosomatische Erkrankungen sehr weit gefasst sind
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @emily_rj: @winksmcgee @CariCGA @bennessb Here’s the EDS survey that found it to be not rare at all; as many as 1 in 500 https://t.co/zZ…
RT @emily_rj: @winksmcgee @CariCGA @bennessb Here’s the EDS survey that found it to be not rare at all; as many as 1 in 500 https://t.co/zZ…
RT @emily_rj: @winksmcgee @CariCGA @bennessb Here’s the EDS survey that found it to be not rare at all; as many as 1 in 500 https://t.co/zZ…
RT @emily_rj: @winksmcgee @CariCGA @bennessb Here’s the EDS survey that found it to be not rare at all; as many as 1 in 500 https://t.co/zZ…
EDS actually not that rare, just understudied and treated.
RT @bennessb: (other convo)
RT @emily_rj: @winksmcgee @CariCGA @bennessb Here’s the EDS survey that found it to be not rare at all; as many as 1 in 500 https://t.co/zZ…
(other convo)
RT @emily_rj: @winksmcgee @CariCGA @bennessb Here’s the EDS survey that found it to be not rare at all; as many as 1 in 500 https://t.co/zZ…
RT @emily_rj: @winksmcgee @CariCGA @bennessb Here’s the EDS survey that found it to be not rare at all; as many as 1 in 500 https://t.co/zZ…
RT @emily_rj: @winksmcgee @CariCGA @bennessb Here’s the EDS survey that found it to be not rare at all; as many as 1 in 500 https://t.co/zZ…
RT @emily_rj: @winksmcgee @CariCGA @bennessb Here’s the EDS survey that found it to be not rare at all; as many as 1 in 500 https://t.co/zZ…
RT @emily_rj: @winksmcgee @CariCGA @bennessb Here’s the EDS survey that found it to be not rare at all; as many as 1 in 500 https://t.co/zZ…
RT @enbysousa: this study creates a problem by not distinguishing between types of EDS. by saying that HSD and EDS are interchangeable, wit…
this study creates a problem by not distinguishing between types of EDS. by saying that HSD and EDS are interchangeable, without any room for typing of EDS patients, it leaves those of us with rarer forms stuck in limbo as people try and say “no, vEDS isn’
@winksmcgee @CariCGA @bennessb Here’s the EDS survey that found it to be not rare at all; as many as 1 in 500 https://t.co/zZ7uZXZejK
https://t.co/UCvTkmOP6a @DrEReinhold @JCDemmler
RT @Be_Kinderr: And of course, @DrEReinhold ‘s excellent paper concluding that the prevalence of hEDS in Wales is 1 in 500 people - more th…
@lunettaporchett @Kristin67377787 @DocZing @LaraBloom @thewanreport @washingtonpost I fully agree that EDS is underdx'd. the 1:500 figure is from this article, which combines EDS & JHS (HSD). To say that represents EDS is inaccurate. https://t.co/rAf6Y
@Frollein_Cortex @kokloio267 @saftmoppel Und dann gibt's noch die Diagnosen, bei denen die Häufigkeit unterschätzt wird, weil aufgrund der Annahme, es sei selten, die Diagnose nicht gestellt wird... https://t.co/Ub4Ytu9kVA
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @chronic_action: A great study on Ehlers Danlos Syndrome and Hypermobility 💥🙌🏼 EDS and Hypermobility “have historically been considered…
RT @chronic_action: A great study on Ehlers Danlos Syndrome and Hypermobility 💥🙌🏼 EDS and Hypermobility “have historically been considered…
RT @chronic_action: A great study on Ehlers Danlos Syndrome and Hypermobility 💥🙌🏼 EDS and Hypermobility “have historically been considered…
RT @chronic_action: A great study on Ehlers Danlos Syndrome and Hypermobility 💥🙌🏼 EDS and Hypermobility “have historically been considered…
A great study on Ehlers Danlos Syndrome and Hypermobility 💥🙌🏼 EDS and Hypermobility “have historically been considered rare diseases only affecting the musculoskeletal system and soft tissues. These data demonstrate that both these assertions should be r
RT @Asher_Wolf: Unless of course, @RACSurgeons @anzsurgsocs @acemonline @RACGP @UDRH_VIC @anmf_federal are already including an education e…
RT @Asher_Wolf: Unless of course, @RACSurgeons @anzsurgsocs @acemonline @RACGP @UDRH_VIC @anmf_federal are already including an education e…
RT @Asher_Wolf: Unless of course, @RACSurgeons @anzsurgsocs @acemonline @RACGP @UDRH_VIC @anmf_federal are already including an education e…
RT @Asher_Wolf: Unless of course, @RACSurgeons @anzsurgsocs @acemonline @RACGP @UDRH_VIC @anmf_federal are already including an education e…
RT @Asher_Wolf: Unless of course, @RACSurgeons @anzsurgsocs @acemonline @RACGP @UDRH_VIC @anmf_federal are already including an education e…
RT @Asher_Wolf: Unless of course, @RACSurgeons @anzsurgsocs @acemonline @RACGP @UDRH_VIC @anmf_federal are already including an education e…
RT @Asher_Wolf: Unless of course, @RACSurgeons @anzsurgsocs @acemonline @RACGP @UDRH_VIC @anmf_federal are already including an education e…
RT @Asher_Wolf: Unless of course, @RACSurgeons @anzsurgsocs @acemonline @RACGP @UDRH_VIC @anmf_federal are already including an education e…
RT @Asher_Wolf: Unless of course, @RACSurgeons @anzsurgsocs @acemonline @RACGP @UDRH_VIC @anmf_federal are already including an education e…
Unless of course, @RACSurgeons @anzsurgsocs @acemonline @RACGP @UDRH_VIC @anmf_federal are already including an education element on Ehlers-Danlos Syndrome that includes up to date resources: 1 in 500 isn’t rare https://t.co/6sq6c0TrRl
RT @crystal_mfrt: @MikeMakher What?! GJH is in about 10-12% of the population depending on the study. More than 75% of my clinic cases a…
@MikeMakher What?! GJH is in about 10-12% of the population depending on the study. More than 75% of my clinic cases are kids w hEds,cEds or HSD ( my bias but I used to work in clinics where we saw RARE). Not rare. Near variant of normal w those stats
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @CortDoesScience: @cyan0bacteria @DrEReinhold and @JCDemmler published a great paper on this estimating 1 in 500 as the diagnosed preval…
https://t.co/EdGvuvHYR4: Si es una enfermedad que se presenta 1/500 personas, urge que los médicos generales sepan diagnosticarla: https://t.co/OzJE0Giyqa https://t.co/ELUD06B07G
@cyan0bacteria @DrEReinhold and @JCDemmler published a great paper on this estimating 1 in 500 as the diagnosed prevalence! https://t.co/O9GsGXjWyI
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @mapeav75: Acabo de darme cuenta de que el tweet anterior no enlace a ningún sitio, dejo aquí el enlace del estudio sobre la prevalencia…
RT @YourUnicornMind: It’s claimed that #EhlersDanlosSyndrome is rare. Recent research shows it’s far more likely that it’s rarely diagnose…
It’s claimed that #EhlersDanlosSyndrome is rare. Recent research shows it’s far more likely that it’s rarely diagnosed. https://t.co/kiM0zTVmVX
@LoveInYourTummy @MsRobinHosking I believe @DrEReinhold and @GemmaSPearce cite several references in their paper - https://t.co/sAzfgANCL5 that support this
RT @profamandakirby: Interesting article showing prevalence of Ehlers-Danlos syndrome and hypermobility spectrum disorder are more common b…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @Asher_Wolf: @NadecheHanique @TheEDSociety Etc
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
@lunettaporchett @ccfernandez Yes as referenced in our tweet above the statement we shared is about this paper, and includes a link to the publicly discussed concerns regarding the statement 'EDS/HSD is common' (1 in 500) available here https://t.co/UZJUlG
@TheEDSociety @ccfernandez Please show us these published studies, not references and paywalls. We have asked so many times, so please, show us these studies. No one has ever seen them. Here’s the great paper - from a member of your Medical Board. 1:50
RT @BluesteinLinda: See details here: https://t.co/FnJuqsncC9
RT @BluesteinLinda: See details here: https://t.co/FnJuqsncC9
RT @BluesteinLinda: See details here: https://t.co/FnJuqsncC9
See details here: https://t.co/FnJuqsncC9
@Mrs_Salter_ @cheryleehouston Ok, snark is in I guess? Here ARE the “up to date facts” on prevalence, quite odd you didn’t even want to know what it was? Feel free to provide ‘further education’ on this, I am indeed hoping to learn. Genuinely looking for b
Why Hypermobility Matters Stats & Facts: Estimated 10% of Population is Hypermobile Estimated 1/500 EDS/JHS combined (HSD/hEDS 2017 Classification – 2019 UK – https://t.co/ou954fmIfj) Large Gender Difference – 70% female... https://t.co/elXwvrSf41
RT @DrEReinhold: @ElenaSings @gingko_trees @tee_spoonie Lead author was @JCDemmler who did all the actual data crunching. I just framed it…
hEDS prevalence 1 in 500 👇
@ElenaSings @gingko_trees @tee_spoonie Lead author was @JCDemmler who did all the actual data crunching. I just framed it for doctors. Remember too that our paper reports only DIAGNOSED prevalence. It doesn't count all those undiagnosed! https://t.co/oHlx
RT @DrEReinhold: @kaylejh Here is how #NotRare #EDS/#HSD are (and this is only people who have managed to get a diagnosis written in their…
RT @DrEReinhold: @kaylejh Here is how #NotRare #EDS/#HSD are (and this is only people who have managed to get a diagnosis written in their…
RT @DrEReinhold: @kaylejh Here is how #NotRare #EDS/#HSD are (and this is only people who have managed to get a diagnosis written in their…
RT @DrEReinhold: @kaylejh Here is how #NotRare #EDS/#HSD are (and this is only people who have managed to get a diagnosis written in their…
RT @DrEReinhold: @kaylejh Here is how #NotRare #EDS/#HSD are (and this is only people who have managed to get a diagnosis written in their…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: @dysclinic @BMJ_Open The 'criticism' came from one source and one source only. The Ehlers-Danlos Society. Please read our…
RT @DrEReinhold: @dysclinic @TheEDSociety @Dysautonomia @AANMember @AASAutonomic @JCDemmler For anyone who wants to read our paper for them…
RT @DrEReinhold: @dysclinic @BMJ_Open The 'criticism' came from one source and one source only. The Ehlers-Danlos Society. Please read our…
RT @DrEReinhold: @dysclinic @BMJ_Open The 'criticism' came from one source and one source only. The Ehlers-Danlos Society. Please read our…
RT @DrEReinhold: @dysclinic @TheEDSociety @Dysautonomia @AANMember @AASAutonomic @JCDemmler For anyone who wants to read our paper for them…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @DrEReinhold: @dysclinic @TheEDSociety @Dysautonomia @AANMember @AASAutonomic @JCDemmler For anyone who wants to read our paper for them…
@dysclinic @BMJ_Open The 'criticism' came from one source and one source only. The Ehlers-Danlos Society. Please read our response, published in the journal, for a full riposte. https://t.co/zT3jCxSETy
RT @DrEReinhold: @dysclinic @TheEDSociety @Dysautonomia @AANMember @AASAutonomic @JCDemmler For anyone who wants to read our paper for them…
RT @DrEReinhold: @dysclinic @TheEDSociety @Dysautonomia @AANMember @AASAutonomic @JCDemmler For anyone who wants to read our paper for them…
RT @DrEReinhold: @dysclinic @TheEDSociety @Dysautonomia @AANMember @AASAutonomic @JCDemmler For anyone who wants to read our paper for them…