RT @barnes_johnson: @SpectrumRecruit and here’s a study proving it’s not rare - just missed, & this only includes patients who have been di…
RT @SimonoffBob: At a *Diagnosed* prevalence of 1:500 - the hypermobility type of Ehlers Danlos OFFICIALLY graduates from rare to common. #…
RT @briannasbell: Check it out! It’s not just a hypothesis anymore- Ehlers Danlos isn’t rare! #EDS #NotRare https://t.co/GzI2l4RlUw
This is huge news. New study finds •diagnosed• prevalence of hEDS is 1 in 500 - 1 in 500! And that's the people managing to get diagnosed. hEDS is in no way rare. More resources, more education, more physician awareness please.
RT @AnnMemmott: EDS/Hypermobility. New research showing it's currently about 1 in 500 people. Moves it out of being a 'rare disease' and…
RT @robyndarcey5: Diagnosed prevalence of Ehlers-Danlos syndrome and hypermobility spectrum disorder in Wales, UK: a national electronic co…
RT @GensemerCortney: ~1:500 people with hEDS so why aren’t we educating our medical community? That is MORE than the prevelance of Lupus or…
RT @AnnMemmott: EDS/Hypermobility. New research showing it's currently about 1 in 500 people. Moves it out of being a 'rare disease' and…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: @JCDemmler 's paper on #EDS prevalence and the multi-systemic nature of the disease in both children and adults is out now…
RT @briannasbell: Check it out! It’s not just a hypothesis anymore- Ehlers Danlos isn’t rare! #EDS #NotRare https://t.co/GzI2l4RlUw
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @SimonoffBob: At a *Diagnosed* prevalence of 1:500 - the hypermobility type of Ehlers Danlos OFFICIALLY graduates from rare to common. #…
RT @DrEReinhold: Anyone who can't figure out this riddle, this may help! https://t.co/oHlxLY5MdQ https://t.co/5sS4xxMrDd
RT @Shona_Mu: 'Conclusions EDS and JHS (since March 2017 classified as EDS or HSD) have historically been considered rare diseases only aff…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
@SpectrumRecruit and here’s a study proving it’s not rare - just missed, & this only includes patients who have been diagnosed (so many others dismissed) https://t.co/rl1l442Ems
Great research. Thank you.
hEDS & HSDs 10 times more common than previously thought. #MedTwitter #CardioTwitter #EhlersDanlosSyndrome https://t.co/wMubwVLPCe
RT @SimonoffBob: At a *Diagnosed* prevalence of 1:500 - the hypermobility type of Ehlers Danlos OFFICIALLY graduates from rare to common. #…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsible for deleterious consequences” #WhatSheSaid #NotRare #AmReading
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @dreamwisp: This is a Big Deal for us zebras. It means more doctor training, more research, more access to care. This is huge. https://…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @Laconic_doc: Interesting epidemiological data... ...the zebra 🦓 becomes a horse! 🐎 https://t.co/FtR3Zj9Vhx
RT @dreamwisp: This is a Big Deal for us zebras. It means more doctor training, more research, more access to care. This is huge. https://…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
Anyone who can't figure out this riddle, this may help! https://t.co/oHlxLY5MdQ
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
Not. Rare.
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @SimonoffBob: At a *Diagnosed* prevalence of 1:500 - the hypermobility type of Ehlers Danlos OFFICIALLY graduates from rare to common. #…
RT @SimonoffBob: At a *Diagnosed* prevalence of 1:500 - the hypermobility type of Ehlers Danlos OFFICIALLY graduates from rare to common. #…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @SimonoffBob: At a *Diagnosed* prevalence of 1:500 - the hypermobility type of Ehlers Danlos OFFICIALLY graduates from rare to common. #…
@NHS_HS @NHS_Lothian @NHSBorders @scotgovhealth
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @SimonoffBob: At a *Diagnosed* prevalence of 1:500 - the hypermobility type of Ehlers Danlos OFFICIALLY graduates from rare to common. #…
RT @SimonoffBob: At a *Diagnosed* prevalence of 1:500 - the hypermobility type of Ehlers Danlos OFFICIALLY graduates from rare to common. #…
RT @gemmarosieellen: Bye bye zebra 👋 so #EDS is 10x as common as the widely disseminated guesstimated figure of 1/5000. Ridiculous that the…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
Bye bye zebra 👋 so #EDS is 10x as common as the widely disseminated guesstimated figure of 1/5000. Ridiculous that the assumption that EDS/HSD is rare has continued for so long with no evidence base @ehlersdanlosuk @TheEDSociety @HMSACharity
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @SimonoffBob: At a *Diagnosed* prevalence of 1:500 - the hypermobility type of Ehlers Danlos OFFICIALLY graduates from rare to common. #…
RT @SimonoffBob: At a *Diagnosed* prevalence of 1:500 - the hypermobility type of Ehlers Danlos OFFICIALLY graduates from rare to common. #…
RT @anameescapesme: https://t.co/wXPjU6VgUz. NOT RARE 👏👏👏👏👏
RT @AnnMemmott: EDS/Hypermobility. New research showing it's currently about 1 in 500 people. Moves it out of being a 'rare disease' and…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @Shona_Mu: 'Conclusions EDS and JHS (since March 2017 classified as EDS or HSD) have historically been considered rare diseases only aff…
RT @Shona_Mu: 'Conclusions EDS and JHS (since March 2017 classified as EDS or HSD) have historically been considered rare diseases only aff…
@SussexMSK @CHMS_NHS @healthwatchws @HealthwatchES
RT @AnnMemmott: EDS/Hypermobility. New research showing it's currently about 1 in 500 people. Moves it out of being a 'rare disease' and…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @AnnMemmott: EDS/Hypermobility. New research showing it's currently about 1 in 500 people. Moves it out of being a 'rare disease' and…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
Diagnosed prevalence of Ehlers-Danlos syndrome and hypermobility spectrum disorder in Wales, UK: a national electronic cohort study and case–control comparison
EDS/Hypermobility. New research showing it's currently about 1 in 500 people. Moves it out of being a 'rare disease' and into being something that needs proper care pathways, research and good outcomes. For the autistic communities in particular, as the
RT @Shona_Mu: 'Conclusions EDS and JHS (since March 2017 classified as EDS or HSD) have historically been considered rare diseases only aff…
'Conclusions EDS and JHS (since March 2017 classified as EDS or HSD) have historically been considered rare diseases only affecting the musculoskeletal system and soft tissues. These data demonstrate that both these assertions should be reconsidered'
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
Keep saying to people it's not rare... And here it is!
1:500 diagnosed. So the true prevalence? #EDS
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @JCDemmler: Great to see this paper published in @BMJ_Open today. So how rare are #hEDS and #HSD in routinely collected data and how do…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @JCDemmler: Great to see this paper published in @BMJ_Open today. So how rare are #hEDS and #HSD in routinely collected data and how do…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @jenbrea @Asher_Wolf @Laconic_doc @BluesteinLinda @drmarkporter @Doctor_Stretch @SimonoffBob @H2OhTwist @DrSandeepGupta @YorkCardio
RT @GensemerCortney: ~1:500 people with hEDS so why aren’t we educating our medical community? That is MORE than the prevelance of Lupus or…
RT @mapeav75: Estudio sobre la prevalencia del #EhlersDanlos y el síndrome de #hiperlaxitud articular en Gales. Casi 200 por cada 100.000 E…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @anameescapesme: https://t.co/wXPjU6VgUz. NOT RARE 👏👏👏👏👏
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
https://t.co/wXPjU6VgUz. NOT RARE 👏👏👏👏👏
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
Excellent paper .. thank you