RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @robyndarcey5: Diagnosed prevalence of Ehlers-Danlos syndrome and hypermobility spectrum disorder in Wales, UK: a national electronic co…
RT @JCDemmler: Great to see this paper published in @BMJ_Open today. So how rare are #hEDS and #HSD in routinely collected data and how do…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
With thanks to all involved @DrEReinhold #NotRare
RT @SimonoffBob: At a *Diagnosed* prevalence of 1:500 - the hypermobility type of Ehlers Danlos OFFICIALLY graduates from rare to common. #…
RT @TinaRodwell1: A very important paper for 101 reasons thank you to all involved 💞👏👏👏 https://t.co/qO1ZyndapL
RT @SimonoffBob: At a *Diagnosed* prevalence of 1:500 - the hypermobility type of Ehlers Danlos OFFICIALLY graduates from rare to common. #…
RT @Asher_Wolf: Wow. Ehlers-Danlos isn’t rare. https://t.co/pGsSBG2Rse
Hypermobile ehlers danlos is wayyyy more common than previously thought. Now we just need to know what causes it.
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @dreamwisp: This is a Big Deal for us zebras. It means more doctor training, more research, more access to care. This is huge. https://…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @SimonoffBob: At a *Diagnosed* prevalence of 1:500 - the hypermobility type of Ehlers Danlos OFFICIALLY graduates from rare to common. #…
RT @TinaRodwell1: A very important paper for 101 reasons thank you to all involved 💞👏👏👏 https://t.co/qO1ZyndapL
RT @SimonoffBob: At a *Diagnosed* prevalence of 1:500 - the hypermobility type of Ehlers Danlos OFFICIALLY graduates from rare to common. #…
RT @Asher_Wolf: Wow. Ehlers-Danlos isn’t rare. https://t.co/pGsSBG2Rse
RT @SimonoffBob: At a *Diagnosed* prevalence of 1:500 - the hypermobility type of Ehlers Danlos OFFICIALLY graduates from rare to common. #…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @dreamwisp: This is a Big Deal for us zebras. It means more doctor training, more research, more access to care. This is huge. https://…
Reconsidering #ehlersdanlossyndrome prevalence in the UK. Is this a regional concern? My dad’s side of the family is all British origin - https://t.co/NfhP0zqKU2
This is a Big Deal for us zebras. It means more doctor training, more research, more access to care. This is huge.
RT @SimonoffBob: At a *Diagnosed* prevalence of 1:500 - the hypermobility type of Ehlers Danlos OFFICIALLY graduates from rare to common. #…
RT @DrEReinhold: @JCDemmler 's paper on #EDS prevalence and the multi-systemic nature of the disease in both children and adults is out now…
RT @Laconic_doc: Interesting epidemiological data... ...the zebra 🦓 becomes a horse! 🐎 https://t.co/FtR3Zj9Vhx
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @briannasbell: Check it out! It’s not just a hypothesis anymore- Ehlers Danlos isn’t rare! #EDS #NotRare https://t.co/GzI2l4RlUw
RT @SimonoffBob: At a *Diagnosed* prevalence of 1:500 - the hypermobility type of Ehlers Danlos OFFICIALLY graduates from rare to common. #…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @briannasbell: Check it out! It’s not just a hypothesis anymore- Ehlers Danlos isn’t rare! #EDS #NotRare https://t.co/GzI2l4RlUw
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
@JCDemmler 's paper on #EDS prevalence and the multi-systemic nature of the disease in both children and adults is out now! Thanks to @BMJ_Open for publishing this important work. #NotRare #research #GameChangers https://t.co/4IEFMAt7aD
A very important paper for 101 reasons thank you to all involved 💞👏👏👏
Great to see this paper published in @BMJ_Open today. So how rare are #hEDS and #HSD in routinely collected data and how do people with these conditions compare to controls? @SwanseaUni https://t.co/s88INKT3rF
‘For 86% of the patients, the delay in diagnosis was considered responsible for deleterious consequences...’ Thank you @DrEReinhold & @JCDemmler #EDS
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
Turns out there's strong evidence backing up the community hunch that EDS is not rare, just rarely diagnosed because of lack of education about the syndrome. I certainly have met an awful lot of fellow zebras in my life, and I don't even get out much.
RT @Physiocure1: Well done @DrEReinhold 🙌. Fab paper👍 https://t.co/AmX8gpi23x
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
Well done @DrEReinhold 🙌. Fab paper👍
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @briannasbell: Check it out! It’s not just a hypothesis anymore- Ehlers Danlos isn’t rare! #EDS #NotRare https://t.co/GzI2l4RlUw
WOW a must-read for EDS/HSD patients and advocates. 1/500!
RT @Asher_Wolf: Wow. Ehlers-Danlos isn’t rare. https://t.co/pGsSBG2Rse
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
@mittalnimish
RT @Laconic_doc: Interesting epidemiological data... ...the zebra 🦓 becomes a horse! 🐎 https://t.co/FtR3Zj9Vhx
Estudio sobre la prevalencia del #EhlersDanlos y el síndrome de #hiperlaxitud articular en Gales. Casi 200 por cada 100.000 Eso es mucho, no?
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @Asher_Wolf: Wow. Ehlers-Danlos isn’t rare. https://t.co/pGsSBG2Rse
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @jmrz: This is a HUGE deal for people like me stuck in diagnostic limbo due to doctors refusal to diagnose under the belief that this co…
RT @GensemerCortney: ~1:500 people with hEDS so why aren’t we educating our medical community? That is MORE than the prevelance of Lupus or…
RT @GensemerCortney: ~1:500 people with hEDS so why aren’t we educating our medical community? That is MORE than the prevelance of Lupus or…
RT @Asher_Wolf: Wow. Ehlers-Danlos isn’t rare. https://t.co/pGsSBG2Rse
RT @Asher_Wolf: Wow. Ehlers-Danlos isn’t rare. https://t.co/pGsSBG2Rse
RT @Asher_Wolf: Wow. Ehlers-Danlos isn’t rare. https://t.co/pGsSBG2Rse
Interesting epidemiological data... ...the zebra 🦓 becomes a horse! 🐎
RT @robyndarcey5: Diagnosed prevalence of Ehlers-Danlos syndrome and hypermobility spectrum disorder in Wales, UK: a national electronic co…
RT @Asher_Wolf: Wow. Ehlers-Danlos isn’t rare. https://t.co/pGsSBG2Rse
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @jmrz: This is a HUGE deal for people like me stuck in diagnostic limbo due to doctors refusal to diagnose under the belief that this co…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @Asher_Wolf: Wow. Ehlers-Danlos isn’t rare. https://t.co/pGsSBG2Rse
IT'S NOT RARE!!!! 🥂🎊🎉 https://t.co/ykzr1ob8JS
~1:500 people with hEDS so why aren’t we educating our medical community? That is MORE than the prevelance of Lupus or MS. Yet patients are forced to travel long distances for educated physicians to treat EDS & related conditions https://t.co/O9GsGXjWy
This is a HUGE deal for people like me stuck in diagnostic limbo due to doctors refusal to diagnose under the belief that this condition is too rare, and therefore, next to impossible for me to have. Despite ticking increasing symptom boxes for it.
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @Asher_Wolf: Wow. Ehlers-Danlos isn’t rare. https://t.co/pGsSBG2Rse
@DrEReinhold @JCDemmler Thank you for this long awaited #research. Finally some evidence that #hEDS & #HSD are #notrare. Now what? @NICEComms @NICEGetInvolved guidelines? Will @NHSEngland finally update their information? If #hEDS isn't rare it has to
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @SimonoffBob: At a *Diagnosed* prevalence of 1:500 - the hypermobility type of Ehlers Danlos OFFICIALLY graduates from rare to common. #…
RT @Asher_Wolf: Wow. Ehlers-Danlos isn’t rare. https://t.co/pGsSBG2Rse
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @Asher_Wolf: Wow. Ehlers-Danlos isn’t rare. https://t.co/pGsSBG2Rse
RT @Asher_Wolf: Wow. Ehlers-Danlos isn’t rare. https://t.co/pGsSBG2Rse
RT @Asher_Wolf: Wow. Ehlers-Danlos isn’t rare. https://t.co/pGsSBG2Rse
RT @Asher_Wolf: Wow. Ehlers-Danlos isn’t rare. https://t.co/pGsSBG2Rse
RT @Asher_Wolf: Wow. Ehlers-Danlos isn’t rare. https://t.co/pGsSBG2Rse
RT @robyndarcey5: Diagnosed prevalence of Ehlers-Danlos syndrome and hypermobility spectrum disorder in Wales, UK: a national electronic co…
@JCDemmler 's paper on #EDS prevalence and the multi-systemic nature of the disease in both children and adults is out now! Thanks to @BMJ_Open for publishing this important work. #NotRare #research #GameChangers https://t.co/4IEFMAKIzd
RT @Asher_Wolf: Wow. Ehlers-Danlos isn’t rare. https://t.co/pGsSBG2Rse
RT @Asher_Wolf: Wow. Ehlers-Danlos isn’t rare. https://t.co/pGsSBG2Rse
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
Spoiler alert - it's not rare (1 in 500) 🌟🙌 Diagnosed prevalence of Ehlers-Danlos syndrome and hypermobility spectrum disorder https://t.co/aQht7qM45L
RT @Asher_Wolf: Wow. Ehlers-Danlos isn’t rare. https://t.co/pGsSBG2Rse
RT @Asher_Wolf: Wow. Ehlers-Danlos isn’t rare. https://t.co/pGsSBG2Rse
RT @Asher_Wolf: Wow. Ehlers-Danlos isn’t rare. https://t.co/pGsSBG2Rse
@MortuaryReport might interest you.
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…