RT @DrEReinhold: Some of you may be interested in our authors joint response to Hakim et al's letter regarding our recently published work…
RT @DrEReinhold: Some of you may be interested in our authors joint response to Hakim et al's letter regarding our recently published work…
RT @DrEReinhold: Some of you may be interested in our authors joint response to Hakim et al's letter regarding our recently published work…
RT @jenbrea: I don’t know enough about hEDS and the evolution of its criteria to have an informed opinion about this debate. However, a rec…
RT @DrEReinhold: Some of you may be interested in our authors joint response to Hakim et al's letter regarding our recently published work…
RT @DrEReinhold: Some of you may be interested in our authors joint response to Hakim et al's letter regarding our recently published work…
RT @jenbrea: I don’t know enough about hEDS and the evolution of its criteria to have an informed opinion about this debate. However, a rec…
RT @DrEReinhold: Some of you may be interested in our authors joint response to Hakim et al's letter regarding our recently published work…
RT @DrEReinhold: Some of you may be interested in our authors joint response to Hakim et al's letter regarding our recently published work…
RT @DrEReinhold: Some of you may be interested in our authors joint response to Hakim et al's letter regarding our recently published work…
RT @DrEReinhold: Some of you may be interested in our authors joint response to Hakim et al's letter regarding our recently published work…
RT @DrEReinhold: Some of you may be interested in our authors joint response to Hakim et al's letter regarding our recently published work…
RT @Laconic_doc: If you were confused or disheartened by Hakim's critique of the recent EDS prevalence paper, here is a full and comprehens…
RT @Laconic_doc: If you were confused or disheartened by Hakim's critique of the recent EDS prevalence paper, here is a full and comprehens…
RT @Laconic_doc: If you were confused or disheartened by Hakim's critique of the recent EDS prevalence paper, here is a full and comprehens…
If you were confused or disheartened by Hakim's critique of the recent EDS prevalence paper, here is a full and comprehensive response! HT
RT @DrEReinhold: Some of you may be interested in our authors joint response to Hakim et al's letter regarding our recently published work…
RT @DrEReinhold: Some of you may be interested in our authors joint response to Hakim et al's letter regarding our recently published work…
RT @DrEReinhold: Some of you may be interested in our authors joint response to Hakim et al's letter regarding our recently published work…
RT @DrEReinhold: Some of you may be interested in our authors joint response to Hakim et al's letter regarding our recently published work…
RT @DrEReinhold: Some of you may be interested in our authors joint response to Hakim et al's letter regarding our recently published work…
RT @DrEReinhold: Some of you may be interested in our authors joint response to Hakim et al's letter regarding our recently published work…
I don’t know enough about hEDS and the evolution of its criteria to have an informed opinion about this debate. However, a recent study of 234 #MECFS patients found that 20% of the sample had 2017 criteria hEDS.
RT @DrEReinhold: Some of you may be interested in our authors joint response to Hakim et al's letter regarding our recently published work…
RT @DrEReinhold: Some of you may be interested in our authors joint response to Hakim et al's letter regarding our recently published work…
RT @DrEReinhold: Some of you may be interested in our authors joint response to Hakim et al's letter regarding our recently published work…
RT @DrEReinhold: Some of you may be interested in our authors joint response to Hakim et al's letter regarding our recently published work…
RT @DrEReinhold: Some of you may be interested in our authors joint response to Hakim et al's letter regarding our recently published work…
RT @DrEReinhold: Some of you may be interested in our authors joint response to Hakim et al's letter regarding our recently published work…
It's been something like two years since I've been well enough to be in academia, and I'd forgotten how much I lived for academic shade until now
RT @DrEReinhold: Some of you may be interested in our authors joint response to Hakim et al's letter regarding our recently published work…
Some of you may be interested in our authors joint response to Hakim et al's letter regarding our recently published work #research @JCDemmler @BendyBrain @jenbrea @GemmaSPearce @H2OhTwist @roomcmoo @HMSACharity @ehlersdanlosuk @Laconic_doc @Doctor_Stretch
RT @ElleSENadvocate: #at last EDS is actually being validated & those that are in the dark about it can read this & be enlightened ... the…
@SimonoffBob @jenbrea @OdyO11 @MTackCVS @dSavannahCreate here's something you may wish to read, if you have not already - and thanks for the effort https://t.co/JF50IuIb1C
Gives this response by @DrEReinhold @JCDemmler et al a chef's kiss. addresses the concerns but doesn't pull punches. No alternate facts here https://t.co/tXQItkF8kT
RT @jenbrea: Given that #MECFS is a COMMON condition: https://t.co/nggFPZ2hBt, if the 20% of this sample who meet #hEDS criteria reflect br…
RT @jenbrea: Given that #MECFS is a COMMON condition: https://t.co/nggFPZ2hBt, if the 20% of this sample who meet #hEDS criteria reflect br…
RT @jenbrea: Given that #MECFS is a COMMON condition: https://t.co/nggFPZ2hBt, if the 20% of this sample who meet #hEDS criteria reflect br…
Given that #MECFS is a COMMON condition: https://t.co/nggFPZ2hBt, if the 20% of this sample who meet #hEDS criteria reflect broader population, then #hEDS is definitely NOT rare https://t.co/3GWTzLgfBa @DrEReinhold
RT @littlehux: @JessicaOOTC You might be interested in this — a paper came out this month showing hEDS is found in 1 in 500 people and is m…
Ignore @BankerBun Just a trash fire troll account only been up since March. People who don’t suffer with an invisible disability can NEVER understand, I don’t care what school you went to. Spend a week in our shoes and then say we’re “faking” #fuming #eds
@BankerBun @JeninaB12 Newcastle upon Tyne. Here's a paper I co-authored on #EDS for your CPD. https://t.co/oHlxLY5MdQ
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
@DHSCgovuk @nicjam55 @nicolablackwood I’m not sure #HSD and #EDS fall under the #rarediseases umbrella now. New statistics suggest it is no longer 1:5000 but more like 1:500 The other 13 types I suspect still fall under the #rarediseases umbrella. https:
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
@jkaffash @BBCRadio4 @BBCNews Still causing trouble, but mostly from my bed these days as my health remains poor. Finally published that paper I mentioned to you ages ago. We're just finalising our reply to the rapid response letter. Do you want an exclusi
@JessicaOOTC You might be interested in this — a paper came out this month showing hEDS is found in 1 in 500 people and is much more common than people have previously thought. So glad you have the right diagnosis now.
RT @DrEReinhold: @louisegranthip @higo_anna @CollegePodiatry @HalsteadDr @EmmaCowleyPhD @Physiocure1 Hope you liked the new #research paper…
RT @louisegranthip: Yes 😊👍well done @DrEReinhold https://t.co/unQGKj8gZ3
😊👍great work
Yes 😊👍well done @DrEReinhold
@louisegranthip @higo_anna @CollegePodiatry @HalsteadDr @EmmaCowleyPhD @Physiocure1 Hope you liked the new #research paper! #copc19 @CollegePodiatry https://t.co/oHlxLY5MdQ
RT @robyndarcey5: @ProfRecordSB I would absolutely want to be kept updated, via email from my surgery. Instead it’s me sending new literatu…
@ProfRecordSB I would absolutely want to be kept updated, via email from my surgery. Instead it’s me sending new literature on my genetic condition’s #hEDS #PoTS #MCAS to them! #patientpower https://t.co/0GQfBiYQGv
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
@DrSdeG @DrAndrewGreen @medicsupport @DrLindaDykes @EDSAmanda @Liz_ORiordan I just can't stop myself from fighting for the #EDS and #MCAS community. We are so neglected and poorly served. Did you see our latest paper? Could it be something for NB Medical,
RT @DrEReinhold: Our latest epidemiological #research on #EDS #HSD #JHS. https://t.co/hIpzDQmITT
RT @DrEReinhold: @JCDemmler 's paper on #EDS prevalence and the multi-systemic nature of the disease in both children and adults is out now…
@pcrsociety #PCRMMCON19 link the EDS resources #EDS
RT @mayadusenbery: New study finds women with Ehlers-Danlos syndrome are diagnosed 8.5 years later than their male counterparts on average.…
RT @pcrsociety: Two days to go the PCRMM Society Conference 14-16 Nov Looking forward to welcoming @DrEReinhold to give the Andy Martynoga…
RT @pcrsociety: Two days to go the PCRMM Society Conference 14-16 Nov Looking forward to welcoming @DrEReinhold to give the Andy Martynoga…
Not surprising given the medical bias doctors have against women and their pain. 🦓💔🦓#BeleiveWomenInPain #PainPatientRights #EDSDiagnosingWomenTakesEightandAHalfYearsLonger #EDSAwareness #EhlersDanlosSyndrome
RT @speakingabtpain: Wow - women diagnosed with EDS or hyper mobility (which I have, in mild form) 8 years later than males! https://t.co/Z…
Clarification about #EDS
RT @DrEReinhold: Thanks @SimonoffBob for summarising @JCDemmler et al research findings. The paper is not a long or particularly complex re…
RT @speakingabtpain: Wow - women diagnosed with EDS or hyper mobility (which I have, in mild form) 8 years later than males! https://t.co/Z…
RT @mayadusenbery: New study finds women with Ehlers-Danlos syndrome are diagnosed 8.5 years later than their male counterparts on average.…
RT @DrEReinhold: Thanks @SimonoffBob for summarising @JCDemmler et al research findings. The paper is not a long or particularly complex re…
RT @pcrsociety: Two days to go the PCRMM Society Conference 14-16 Nov Looking forward to welcoming @DrEReinhold to give the Andy Martynoga…
RT @DrEReinhold: Thanks @SimonoffBob for summarising @JCDemmler et al research findings. The paper is not a long or particularly complex re…
RT @pcrsociety: Two days to go the PCRMM Society Conference 14-16 Nov Looking forward to welcoming @DrEReinhold to give the Andy Martynoga…
RT @pcrsociety: Two days to go the PCRMM Society Conference 14-16 Nov Looking forward to welcoming @DrEReinhold to give the Andy Martynoga…
Two days to go the PCRMM Society Conference 14-16 Nov Looking forward to welcoming @DrEReinhold to give the Andy Martynoga Memorial Lecture. ‘Ehlers-Danlos Syndrome: Not rare, just rarely diagnosed.’ #EDS #MCAS. Programme here https://t.co/knGZPzqwnz. #P
RT @DrEReinhold: Thanks @SimonoffBob for summarising @JCDemmler et al research findings. The paper is not a long or particularly complex re…
RT @speakingabtpain: Wow - women diagnosed with EDS or hyper mobility (which I have, in mild form) 8 years later than males! https://t.co/Z…
RT @speakingabtpain: Wow - women diagnosed with EDS or hyper mobility (which I have, in mild form) 8 years later than males! https://t.co/Z…
RT @speakingabtpain: Wow - women diagnosed with EDS or hyper mobility (which I have, in mild form) 8 years later than males! https://t.co/Z…
RT @speakingabtpain: Wow - women diagnosed with EDS or hyper mobility (which I have, in mild form) 8 years later than males! https://t.co/Z…
RT @speakingabtpain: Wow - women diagnosed with EDS or hyper mobility (which I have, in mild form) 8 years later than males! https://t.co/Z…
RT @DrEReinhold: Thanks @SimonoffBob for summarising @JCDemmler et al research findings. The paper is not a long or particularly complex re…
RT @littlehux: I've talked quite a bit about Ehler's Danlos this year because, as a multi-system disorder, it can affect people's whole bod…
RT @DrEReinhold: Thanks @SimonoffBob for summarising @JCDemmler et al research findings. The paper is not a long or particularly complex re…
'Joint hyper mobility per se is relatively common and thought to be present in 10% of the population in the UK'. @catriona1
Wow - women diagnosed with EDS or hyper mobility (which I have, in mild form) 8 years later than males!
RT @mayadusenbery: New study finds women with Ehlers-Danlos syndrome are diagnosed 8.5 years later than their male counterparts on average.…
RT @mayadusenbery: New study finds women with Ehlers-Danlos syndrome are diagnosed 8.5 years later than their male counterparts on average.…
RT @mayadusenbery: New study finds women with Ehlers-Danlos syndrome are diagnosed 8.5 years later than their male counterparts on average.…
New study finds women with Ehlers-Danlos syndrome are diagnosed 8.5 years later than their male counterparts on average. "The age at first diagnosis peaked in the age group 5–9 years for men and 15–19 years for women." https://t.co/EBmNdkYiC1
RT @littlehux: I've talked quite a bit about Ehler's Danlos this year because, as a multi-system disorder, it can affect people's whole bod…
RT @DrEReinhold: Thanks @SimonoffBob for summarising @JCDemmler et al research findings. The paper is not a long or particularly complex re…
RT @DrEReinhold: Thanks @SimonoffBob for summarising @JCDemmler et al research findings. The paper is not a long or particularly complex re…
RT @DrEReinhold: Thanks @SimonoffBob for summarising @JCDemmler et al research findings. The paper is not a long or particularly complex re…
RT @littlehux: I've talked quite a bit about Ehler's Danlos this year because, as a multi-system disorder, it can affect people's whole bod…