RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @mittalnimish: This latest nationwide study from Wales,UK reports the combined prevalence of Hypermobility Spectrum Disorder and hEDS to…
RT @Esther_Nye: Interesting findings that suggest hEDS/HSD might be up to 10 times more prevalent than previously thought, and that women h…
RT @Esther_Nye: Interesting findings that suggest hEDS/HSD might be up to 10 times more prevalent than previously thought, and that women h…
RT @mittalnimish: This latest nationwide study from Wales,UK reports the combined prevalence of Hypermobility Spectrum Disorder and hEDS to…
RT @mittalnimish: This latest nationwide study from Wales,UK reports the combined prevalence of Hypermobility Spectrum Disorder and hEDS to…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @mittalnimish: This latest nationwide study from Wales,UK reports the combined prevalence of Hypermobility Spectrum Disorder and hEDS to…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
Interesting findings that suggest hEDS/HSD might be up to 10 times more prevalent than previously thought, and that women had to wait an average of 9 years more than men for a diagnosis. Nice to know that sexist bias made my life that much worse 👍 https:/
RT @mittalnimish: This latest nationwide study from Wales,UK reports the combined prevalence of Hypermobility Spectrum Disorder and hEDS to…
RT @mittalnimish: This latest nationwide study from Wales,UK reports the combined prevalence of Hypermobility Spectrum Disorder and hEDS to…
RT @mittalnimish: This latest nationwide study from Wales,UK reports the combined prevalence of Hypermobility Spectrum Disorder and hEDS to…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @mittalnimish: This latest nationwide study from Wales,UK reports the combined prevalence of Hypermobility Spectrum Disorder and hEDS to…
RT @mittalnimish: This latest nationwide study from Wales,UK reports the combined prevalence of Hypermobility Spectrum Disorder and hEDS to…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @mittalnimish: This latest nationwide study from Wales,UK reports the combined prevalence of Hypermobility Spectrum Disorder and hEDS to…
RT @mittalnimish: This latest nationwide study from Wales,UK reports the combined prevalence of Hypermobility Spectrum Disorder and hEDS to…
RT @rollwthepunches: Hey. Hey. Guess what. hEDS. IS. NOT. RARE. 🦓🚫 https://t.co/HOQl8EptZd https://t.co/tKeNHchiLH
RT @mittalnimish: This latest nationwide study from Wales,UK reports the combined prevalence of Hypermobility Spectrum Disorder and hEDS to…
RT @mittalnimish: This latest nationwide study from Wales,UK reports the combined prevalence of Hypermobility Spectrum Disorder and hEDS to…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @TomGreenfield: Prevalence of Ehlers Danlos Syndrome is ~ 1 in 500 people, not 1 in 5,000 as generally quoted. 70% of the individuals wi…
RT @mittalnimish: This latest nationwide study from Wales,UK reports the combined prevalence of Hypermobility Spectrum Disorder and hEDS to…
@HMSACharity for your information
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @mapeav75: Estudio sobre la prevalencia del #EhlersDanlos y el síndrome de #hiperlaxitud articular en Gales. Casi 200 por cada 100.000 E…
RT @DrEReinhold: @KimberlyReinh14 @BMJ_Open Thanks for everything! https://t.co/oHlxLY5MdQ
RT @TomGreenfield: Prevalence of Ehlers Danlos Syndrome is ~ 1 in 500 people, not 1 in 5,000 as generally quoted. 70% of the individuals wi…
RT @AnnMemmott: EDS/Hypermobility. New research showing it's currently about 1 in 500 people. Moves it out of being a 'rare disease' and…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @BluesteinLinda: YEP! 🦓👍💪 “EDS and JHS (since March 2017 classified as EDS or HSD) have historically been considered rare diseases only…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
YEP! 🦓👍💪 “EDS and JHS (since March 2017 classified as EDS or HSD) have historically been considered rare diseases only affecting the musculoskeletal system and soft tissues. These data demonstrate that both these assertions should be reconsidered.”
New research suggests hypermobile EDS (hEDS) and hypermobility spectrum disorder (HSD), previously known as joint hypermobility syndrome (JHS), are 10 times more common than previously thought. https://t.co/ug2jaSyh4K
RT @JCDemmler: Great to see this paper published in @BMJ_Open today. So how rare are #hEDS and #HSD in routinely collected data and how do…
RT @rollwthepunches: Hey. Hey. Guess what. hEDS. IS. NOT. RARE. 🦓🚫 https://t.co/HOQl8EptZd https://t.co/tKeNHchiLH
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @TomGreenfield: Prevalence of Ehlers Danlos Syndrome is ~ 1 in 500 people, not 1 in 5,000 as generally quoted. 70% of the individuals wi…
RT @JCDemmler: Great to see this paper published in @BMJ_Open today. So how rare are #hEDS and #HSD in routinely collected data and how do…
RT @dreamwisp: This is a Big Deal for us zebras. It means more doctor training, more research, more access to care. This is huge. https://…
RT @dreamwisp: This is a Big Deal for us zebras. It means more doctor training, more research, more access to care. This is huge. https://…
RT @TomGreenfield: Prevalence of Ehlers Danlos Syndrome is ~ 1 in 500 people, not 1 in 5,000 as generally quoted. 70% of the individuals wi…
Excellent data driven study showing EDS is not so rare.... https://t.co/xUCa5GWjyZ
RT @dreamwisp: This is a Big Deal for us zebras. It means more doctor training, more research, more access to care. This is huge. https://…
@bennessb Here's the source article that started the furor: https://t.co/8ROMLfc94a
RT @TomGreenfield: Prevalence of Ehlers Danlos Syndrome is ~ 1 in 500 people, not 1 in 5,000 as generally quoted. 70% of the individuals wi…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @UntoNuggan: Context re: researcher 2 https://t.co/R3Mtw6ioa3
RT @SimonoffBob: At a *Diagnosed* prevalence of 1:500 - the hypermobility type of Ehlers Danlos OFFICIALLY graduates from rare to common. #…
RT @BeyondtheDx: @ncats_nih_gov Not rare!! Rarely diagnosed!!! Not rare even before you take into consideration #EDS is massively misdiagno…
RT @BeyondtheDx: @NIHDirector Not rare. Rarely diagnosed. Please listen to the patients. https://t.co/AcP1oQzWhH https://t.co/RH2HQI87PW
RT @Laconic_doc: Interesting epidemiological data... ...the zebra 🦓 becomes a horse! 🐎 https://t.co/FtR3Zj9Vhx
RT @nerdymedzebra: Prevalence of *DIAGNOSED!* hEDS/HSD: 1:500... #NotRare! https://t.co/OdcBVaGn1f
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @mittalnimish: This latest nationwide study from Wales,UK reports the combined prevalence of Hypermobility Spectrum Disorder and hEDS to…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @dreamwisp: This is a Big Deal for us zebras. It means more doctor training, more research, more access to care. This is huge. https://…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @TomGreenfield: Prevalence of Ehlers Danlos Syndrome is ~ 1 in 500 people, not 1 in 5,000 as generally quoted. 70% of the individuals wi…
RT @mittalnimish: This latest nationwide study from Wales,UK reports the combined prevalence of Hypermobility Spectrum Disorder and hEDS to…
RT @JenniferAlbrig5: Everyone who suspects they have been misdiagnosed with related conditions should read the facts of the prevalence of h…
RT @Asher_Wolf: Wow. Ehlers-Danlos isn’t rare. https://t.co/pGsSBG2Rse
This latest nationwide study from Wales,UK reports the combined prevalence of Hypermobility Spectrum Disorder and hEDS to be 1:500. For perspective, prevalence of Multiple Sclerosis in Canada is 1:385. This clearly suggests HSD/hEDS is not a rare disorder.
RT @DrEReinhold: @KimberlyReinh14 @BMJ_Open Thanks for everything! https://t.co/oHlxLY5MdQ
RT @EDSWellnessSol: Diagnosed prevalence of Ehlers-Danlos syndrome and hypermobility spectrum disorder in Wales, UK: a national electronic…
Diagnosed prevalence of Ehlers-Danlos syndrome and hypermobility spectrum disorder in Wales, UK: a national electronic cohort study and case–control comparison | BMJ Open https://t.co/CEPbypUPWS
RT @JCDemmler: Great to see this paper published in @BMJ_Open today. So how rare are #hEDS and #HSD in routinely collected data and how do…
RT @AnnMemmott: EDS/Hypermobility. New research showing it's currently about 1 in 500 people. Moves it out of being a 'rare disease' and…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @TinaRodwell1: A very important paper for 101 reasons thank you to all involved 💞👏👏👏 https://t.co/qO1ZyndapL
RT @CallMeMoNow: "Conclusions EDS and JHS (since March 2017 classified as EDS or HSD) have historically been considered rare diseases only…
RT @rollwthepunches: Hey. Hey. Guess what. hEDS. IS. NOT. RARE. 🦓🚫 https://t.co/HOQl8EptZd https://t.co/tKeNHchiLH
RT @AnnMemmott: EDS/Hypermobility. New research showing it's currently about 1 in 500 people. Moves it out of being a 'rare disease' and…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @rollwthepunches: Hey. Hey. Guess what. hEDS. IS. NOT. RARE. 🦓🚫 https://t.co/HOQl8EptZd https://t.co/tKeNHchiLH
via RawlsMD: https://t.co/hEG4LldCen #lyme #spoonie
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Really cool! I wish every article was open access like @BMJ_Open https://t.co/oHlxLY5MdQ https://t.co/QWRh8j4mJx
@DrEReinhold thank you so much for your terrific contribution to our understanding of #EDS.
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @JenniferAlbrig5: Everyone who suspects they have been misdiagnosed with related conditions should read the facts of the prevalence of h…
RT @AnnMemmott: EDS/Hypermobility. New research showing it's currently about 1 in 500 people. Moves it out of being a 'rare disease' and…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…