RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
Gender bias...
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @JenniferAlbrig5: Everyone who suspects they have been misdiagnosed with related conditions should read the facts of the prevalence of h…
RT @TomGreenfield: Prevalence of Ehlers Danlos Syndrome is ~ 1 in 500 people, not 1 in 5,000 as generally quoted. 70% of the individuals wi…
RT @AnnMemmott: EDS/Hypermobility. New research showing it's currently about 1 in 500 people. Moves it out of being a 'rare disease' and…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @rollwthepunches: Hey. Hey. Guess what. hEDS. IS. NOT. RARE. 🦓🚫 https://t.co/HOQl8EptZd https://t.co/tKeNHchiLH
RT @mapeav75: Estudio sobre la prevalencia del #EhlersDanlos y el síndrome de #hiperlaxitud articular en Gales. Casi 200 por cada 100.000 E…
RT @rollwthepunches: Hey. Hey. Guess what. hEDS. IS. NOT. RARE. 🦓🚫 https://t.co/HOQl8EptZd https://t.co/tKeNHchiLH
RT @rollwthepunches: Hey. Hey. Guess what. hEDS. IS. NOT. RARE. 🦓🚫 https://t.co/HOQl8EptZd https://t.co/tKeNHchiLH
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @SimonoffBob: At a *Diagnosed* prevalence of 1:500 - the hypermobility type of Ehlers Danlos OFFICIALLY graduates from rare to common. #…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @DrEReinhold: @KimberlyReinh14 @BMJ_Open Thanks for everything! https://t.co/oHlxLY5MdQ
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
Prevalence of *DIAGNOSED!* hEDS/HSD: 1:500... #NotRare!
I wonder if @TheEDSociety will share this and comment?
There is some emerging evidence hinting that nutritional deficiencies may play a key role, both seeming to be more prevalent in these patients and possibly implicated in the development of some of the complications. https://t.co/Q3wmWVxlja
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @JenniferAlbrig5: Everyone who suspects they have been misdiagnosed with related conditions should read the facts of the prevalence of h…
RT @DrEReinhold: Really cool! I wish every article was open access like @BMJ_Open https://t.co/oHlxLY5MdQ https://t.co/QWRh8j4mJx
Really cool! I wish every article was open access like @BMJ_Open https://t.co/oHlxLY5MdQ
RT @AnnMemmott: EDS/Hypermobility. New research showing it's currently about 1 in 500 people. Moves it out of being a 'rare disease' and…
Diagnosed prevalence of Ehlers-Danlos syndrome and hypermobility spectrum disorder in Wales, UK: a national electronic cohort study and case–control comparison https://t.co/8uby5QP6kj
RT @JCDemmler: Great to see this paper published in @BMJ_Open today. So how rare are #hEDS and #HSD in routinely collected data and how do…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @Laconic_doc: Interesting epidemiological data... ...the zebra 🦓 becomes a horse! 🐎 https://t.co/FtR3Zj9Vhx
RT @GensemerCortney: ~1:500 people with hEDS so why aren’t we educating our medical community? That is MORE than the prevelance of Lupus or…
RT @JenniferAlbrig5: Everyone who suspects they have been misdiagnosed with related conditions should read the facts of the prevalence of h…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @JenniferAlbrig5: Everyone who suspects they have been misdiagnosed with related conditions should read the facts of the prevalence of h…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @JenniferAlbrig5: Everyone who suspects they have been misdiagnosed with related conditions should read the facts of the prevalence of h…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @Shona_Mu: 'Conclusions EDS and JHS (since March 2017 classified as EDS or HSD) have historically been considered rare diseases only aff…
RT @dreamwisp: This is a Big Deal for us zebras. It means more doctor training, more research, more access to care. This is huge. https://…
RT @TomGreenfield: Prevalence of Ehlers Danlos Syndrome is ~ 1 in 500 people, not 1 in 5,000 as generally quoted. 70% of the individuals wi…
@TheEDSociety Are you going to acknowledge this study? https://t.co/AcP1oQzWhH
RT @TomGreenfield: Prevalence of Ehlers Danlos Syndrome is ~ 1 in 500 people, not 1 in 5,000 as generally quoted. 70% of the individuals wi…
RT @TomGreenfield: Prevalence of Ehlers Danlos Syndrome is ~ 1 in 500 people, not 1 in 5,000 as generally quoted. 70% of the individuals wi…
RT @TomGreenfield: Prevalence of Ehlers Danlos Syndrome is ~ 1 in 500 people, not 1 in 5,000 as generally quoted. 70% of the individuals wi…
RT @BeyondtheDx: @ncats_nih_gov Not rare!! Rarely diagnosed!!! Not rare even before you take into consideration #EDS is massively misdiagno…
RT @anameescapesme: https://t.co/wXPjU6VgUz. NOT RARE 👏👏👏👏👏
@ORDR Study #EDS is not rare, even before you take into consideration 19 of 20 people with EDS are misdiagnosed or not diagnosed. per Dr Grahme, EDS expert. https://t.co/AcP1oQzWhH
RT @JenniferAlbrig5: Everyone who suspects they have been misdiagnosed with related conditions should read the facts of the prevalence of h…
RT @BeyondtheDx: @ncats_nih_gov Not rare!! Rarely diagnosed!!! Not rare even before you take into consideration #EDS is massively misdiagno…
RT @JenniferAlbrig5: Everyone who suspects they have been misdiagnosed with related conditions should read the facts of the prevalence of h…
Everyone who suspects they have been misdiagnosed with related conditions should read the facts of the prevalence of hEDS here 👇Great job @JCDemmler Emma & team you smashed it !
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @BeyondtheDx: @ncats_nih_gov Not rare!! Rarely diagnosed!!! Not rare even before you take into consideration #EDS is massively misdiagno…
RT @BeyondtheDx: @NIHDirector Not rare. Rarely diagnosed. Please listen to the patients. https://t.co/AcP1oQzWhH https://t.co/RH2HQI87PW
RT @BeyondtheDx: @NIHDirector Not rare. Rarely diagnosed. Please listen to the patients. https://t.co/AcP1oQzWhH https://t.co/RH2HQI87PW
RT @BeyondtheDx: @ncats_nih_gov Not rare!! Rarely diagnosed!!! Not rare even before you take into consideration #EDS is massively misdiagno…
RT @JCDemmler: Great to see this paper published in @BMJ_Open today. So how rare are #hEDS and #HSD in routinely collected data and how do…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
@ncats_nih_gov Not rare!! Rarely diagnosed!!! Not rare even before you take into consideration #EDS is massively misdiagnosed and under diagnosed.
@NIHDirector Not rare. Rarely diagnosed. Please listen to the patients. https://t.co/AcP1oQzWhH
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @AnnMemmott: EDS/Hypermobility. New research showing it's currently about 1 in 500 people. Moves it out of being a 'rare disease' and…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
This study proves that EDS is not rare, even before taking into consideration that it is massively misdiagnosed and under diagnosed. So grateful the the persistence and hard work that when into this study. Things are starting to... https://t.co/AcP1oQzWhH
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @SimonoffBob: At a *Diagnosed* prevalence of 1:500 - the hypermobility type of Ehlers Danlos OFFICIALLY graduates from rare to common. #…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @AnnMemmott: EDS/Hypermobility. New research showing it's currently about 1 in 500 people. Moves it out of being a 'rare disease' and…
RT @Shona_Mu: 'Conclusions EDS and JHS (since March 2017 classified as EDS or HSD) have historically been considered rare diseases only aff…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @AnnMemmott: EDS/Hypermobility. New research showing it's currently about 1 in 500 people. Moves it out of being a 'rare disease' and…
RT @SimonoffBob: At a *Diagnosed* prevalence of 1:500 - the hypermobility type of Ehlers Danlos OFFICIALLY graduates from rare to common. #…
RT @Asher_Wolf: Wow. Ehlers-Danlos isn’t rare. https://t.co/pGsSBG2Rse
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @SimonoffBob: At a *Diagnosed* prevalence of 1:500 - the hypermobility type of Ehlers Danlos OFFICIALLY graduates from rare to common. #…
RT @SimonoffBob: At a *Diagnosed* prevalence of 1:500 - the hypermobility type of Ehlers Danlos OFFICIALLY graduates from rare to common. #…
RT @SimonoffBob: At a *Diagnosed* prevalence of 1:500 - the hypermobility type of Ehlers Danlos OFFICIALLY graduates from rare to common. #…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @Shona_Mu: 'Conclusions EDS and JHS (since March 2017 classified as EDS or HSD) have historically been considered rare diseases only aff…
Hey. Hey. Guess what. hEDS. IS. NOT. RARE. 🦓🚫 https://t.co/tKeNHchiLH
RT @JCDemmler: Great to see this paper published in @BMJ_Open today. So how rare are #hEDS and #HSD in routinely collected data and how do…
RT @SimonoffBob: At a *Diagnosed* prevalence of 1:500 - the hypermobility type of Ehlers Danlos OFFICIALLY graduates from rare to common. #…