RT @DrEReinhold: @dysclinic @TheEDSociety @Dysautonomia @AANMember @AASAutonomic @JCDemmler For anyone who wants to read our paper for them…
RT @DrEReinhold: @dysclinic @TheEDSociety @Dysautonomia @AANMember @AASAutonomic @JCDemmler For anyone who wants to read our paper for them…
RT @DrEReinhold: @dysclinic @TheEDSociety @Dysautonomia @AANMember @AASAutonomic @JCDemmler For anyone who wants to read our paper for them…
RT @DrEReinhold: @dysclinic @TheEDSociety @Dysautonomia @AANMember @AASAutonomic @JCDemmler For anyone who wants to read our paper for them…
RT @DrEReinhold: @dysclinic @TheEDSociety @Dysautonomia @AANMember @AASAutonomic @JCDemmler For anyone who wants to read our paper for them…
RT @DrEReinhold: @dysclinic @TheEDSociety @Dysautonomia @AANMember @AASAutonomic @JCDemmler For anyone who wants to read our paper for them…
RT @DrEReinhold: @dysclinic @TheEDSociety @Dysautonomia @AANMember @AASAutonomic @JCDemmler For anyone who wants to read our paper for them…
RT @DrEReinhold: @dysclinic @TheEDSociety @Dysautonomia @AANMember @AASAutonomic @JCDemmler For anyone who wants to read our paper for them…
@dysclinic @TheEDSociety @Dysautonomia @AANMember @AASAutonomic @JCDemmler For anyone who wants to read our paper for themselves, here it is. It may be worth considering the motivation of the Ehlers Danlos Society in keeping our condition 'rare'. As a prim
@ChrisLeeuwDPT @AlanLevinovitz I think EDS - or the whole spectrum of hypermobility disorders and related comorbidities it might make patients prone to - is probably underdiagnosed. https://t.co/lku3ozhaHA
Alcune malattie classificate come "rare" sono in realtà sottodiagnosticate. In questo senso "l'utilizzo di dati sanitari collegati è un'alternativa economica ed efficace all'esecuzione di studi longitudinali de novo". https://t.co/FRvlQb3Udu #eds #malat
RT @DrEReinhold: @shreyan1710 @AllisonRBond Not necessary for a diagnosis of #EDS... But the average time from significant symptoms to diag…
@shreyan1710 @AllisonRBond Not necessary for a diagnosis of #EDS... But the average time from significant symptoms to diagnosis is still 14 years. So we're doing something really wrong as a profession in missing this fairly common condition. https://t.co/o
@acweyand @AllisonRBond #NotRare, as @JCDemmler and I showed And so many body systems affected too. Would be great to connect to you fellow EDS doctors. Especially a paediatrician who knows! You are as rare as hens teeth. https://t.co/oHlxLY5MdQ
@ToreTortoise She might be interested in this academic article ❤️
@exceedhergrasp1 @Bobby02854886 @cazzachr @mightystickbug It’s quantifiably not rare 😊
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @JadeBarclay: #longCOVID is not just respiratory #MECFS is not just fatigue #POTS is not just heart #EDS is not just joints Eg, all the…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
All multisystemic & share symptoms plus #MCAS which gives inflammation specific only to MCAS not the others on list but still has some symptoms shared.
RT @morgandawn6: @lithiumdoll "EDS and JHS have historically been considered rare diseases only affecting the musculoskeletal system and so…
RT @morgandawn6: @lithiumdoll "EDS and JHS have historically been considered rare diseases only affecting the musculoskeletal system and so…
RT @DrEReinhold: Our conclusions from this important #BigData #research study. @JCDemmler
RT @morgandawn6: @lithiumdoll "EDS and JHS have historically been considered rare diseases only affecting the musculoskeletal system and so…
RT @DrEReinhold: Our conclusions from this important #BigData #research study. @JCDemmler
RT @DrEReinhold: Our conclusions from this important #BigData #research study. @JCDemmler
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @morgandawn6: @lithiumdoll "EDS and JHS have historically been considered rare diseases only affecting the musculoskeletal system and so…
RT @DrEReinhold: Our conclusions from this important #BigData #research study. @JCDemmler
RT @DrEReinhold: Our conclusions from this important #BigData #research study. @JCDemmler https://t.co/2xTYRsvmWB
RT @morgandawn6: @lithiumdoll "EDS and JHS have historically been considered rare diseases only affecting the musculoskeletal system and so…
RT @morgandawn6: @lithiumdoll "EDS and JHS have historically been considered rare diseases only affecting the musculoskeletal system and so…
RT @DrEReinhold: Our conclusions from this important #BigData #research study. @JCDemmler
RT @DrEReinhold: Our conclusions from this important #BigData #research study. @JCDemmler
Gosh, the graph showing age at diagnosis by gender seems really significant.
RT @DrEReinhold: Our conclusions from this important #BigData #research study. @JCDemmler
RT @DrEReinhold: Our conclusions from this important #BigData #research study. @JCDemmler
@MortuaryReport Unless she's newly qualified, chances of her not having seen a patient with EDS/HSD given a prevalence possibly as high as 1 in 500* seem pretty minimal. Of course everything else here suggests she'd be oblivious to them too. * https://t.c
RT @JadeBarclay: #longCOVID is not just respiratory #MECFS is not just fatigue #POTS is not just heart #EDS is not just joints Eg, all the…
RT @DrEReinhold: So true. Thanks for highlighting these important findings from our #research. #EDS/#HSD #hEDS are truly multisystemic dise…
RT @DrEReinhold: It was the statement about patients 'presenting multiple symptoms' which was the last straw. People with #EDS/#HSD have an…
RT @DrEReinhold: It was the statement about patients 'presenting multiple symptoms' which was the last straw. People with #EDS/#HSD have an…
RT @DrEReinhold: It was the statement about patients 'presenting multiple symptoms' which was the last straw. People with #EDS/#HSD have an…
RT @DrEReinhold: It was the statement about patients 'presenting multiple symptoms' which was the last straw. People with #EDS/#HSD have an…
RT @DrEReinhold: It was the statement about patients 'presenting multiple symptoms' which was the last straw. People with #EDS/#HSD have an…
RT @DrEReinhold: It was the statement about patients 'presenting multiple symptoms' which was the last straw. People with #EDS/#HSD have an…
RT @DrEReinhold: It was the statement about patients 'presenting multiple symptoms' which was the last straw. People with #EDS/#HSD have an…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: It was the statement about patients 'presenting multiple symptoms' which was the last straw. People with #EDS/#HSD have an…
RT @DrEReinhold: It was the statement about patients 'presenting multiple symptoms' which was the last straw. People with #EDS/#HSD have an…
RT @DrEReinhold: It was the statement about patients 'presenting multiple symptoms' which was the last straw. People with #EDS/#HSD have an…
RT @DrEReinhold: It was the statement about patients 'presenting multiple symptoms' which was the last straw. People with #EDS/#HSD have an…
RT @DrEReinhold: It was the statement about patients 'presenting multiple symptoms' which was the last straw. People with #EDS/#HSD have an…
RT @DrEReinhold: It was the statement about patients 'presenting multiple symptoms' which was the last straw. People with #EDS/#HSD have an…
It was the statement about patients 'presenting multiple symptoms' which was the last straw. People with #EDS/#HSD have an average of 7 symptoms at any given time across many body systems. See figures 4&5 from @JCDemmler and my paper for evidence. http
EDS community in Ireland need a multi disciplinary team who can treat the comorbidities holistically. We do not wish to travel or seek advice elsewhere. We deserve treatment through the HSE @roinnslainte @DonnellyStephen @HSELive @MichealMartinTD @Claire
RT @JadeBarclay: #longCOVID is not just respiratory #MECFS is not just fatigue #POTS is not just heart #EDS is not just joints Eg, all the…
RT @JadeBarclay: #longCOVID is not just respiratory #MECFS is not just fatigue #POTS is not just heart #EDS is not just joints Eg, all the…
RT @JadeBarclay: #longCOVID is not just respiratory #MECFS is not just fatigue #POTS is not just heart #EDS is not just joints Eg, all the…
RT @JadeBarclay: #longCOVID is not just respiratory #MECFS is not just fatigue #POTS is not just heart #EDS is not just joints Eg, all the…
RT @JadeBarclay: #longCOVID is not just respiratory #MECFS is not just fatigue #POTS is not just heart #EDS is not just joints Eg, all the…
RT @JadeBarclay: #longCOVID is not just respiratory #MECFS is not just fatigue #POTS is not just heart #EDS is not just joints Eg, all the…
RT @ChronicWholenes: @JadeBarclay Did you see this paper from Dr. Reinhold? @DrEReinhold https://t.co/HDZ7h1k3qO
RT @DrEReinhold: So true. Thanks for highlighting these important findings from our #research. #EDS/#HSD #hEDS are truly multisystemic dise…
RT @DrEReinhold: So true. Thanks for highlighting these important findings from our #research. #EDS/#HSD #hEDS are truly multisystemic dise…
RT @NewFrameThePain: This is very important! All of these "diagnosis" our descriptions of multi-system interactions, not one faulty screw.…
RT @JadeBarclay: #longCOVID is not just respiratory #MECFS is not just fatigue #POTS is not just heart #EDS is not just joints Eg, all the…
This is very important! All of these "diagnosis" our descriptions of multi-system interactions, not one faulty screw. Improve the whole mind-body!
RT @JadeBarclay: #longCOVID is not just respiratory #MECFS is not just fatigue #POTS is not just heart #EDS is not just joints Eg, all the…
RT @DrEReinhold: So true. Thanks for highlighting these important findings from our #research. #EDS/#HSD #hEDS are truly multisystemic dise…
RT @DrEReinhold: So true. Thanks for highlighting these important findings from our #research. #EDS/#HSD #hEDS are truly multisystemic dise…
RT @JadeBarclay: #longCOVID is not just respiratory #MECFS is not just fatigue #POTS is not just heart #EDS is not just joints Eg, all the…
RT @DrEReinhold: So true. Thanks for highlighting these important findings from our #research. #EDS/#HSD #hEDS are truly multisystemic dise…
RT @DrEReinhold: So true. Thanks for highlighting these important findings from our #research. #EDS/#HSD #hEDS are truly multisystemic dise…
RT @DrEReinhold: So true. Thanks for highlighting these important findings from our #research. #EDS/#HSD #hEDS are truly multisystemic dise…
The prevalence of EDS/hypermobility spectrum disorders is likely underestimated, and it's a systemic disorder, so a diagnosis makes all the difference for patients and can help them access management options. https://t.co/lku3ozhaHA
RT @JadeBarclay: #longCOVID is not just respiratory #MECFS is not just fatigue #POTS is not just heart #EDS is not just joints Eg, all the…
RT @JadeBarclay: #longCOVID is not just respiratory #MECFS is not just fatigue #POTS is not just heart #EDS is not just joints Eg, all the…
RT @DrEReinhold: So true. Thanks for highlighting these important findings from our #research. #EDS/#HSD #hEDS are truly multisystemic dise…
RT @JadeBarclay: #longCOVID is not just respiratory #MECFS is not just fatigue #POTS is not just heart #EDS is not just joints Eg, all the…
RT @JadeBarclay: #longCOVID is not just respiratory #MECFS is not just fatigue #POTS is not just heart #EDS is not just joints Eg, all the…
RT @DrEReinhold: So true. Thanks for highlighting these important findings from our #research. #EDS/#HSD #hEDS are truly multisystemic dise…
We do.
RT @DrEReinhold: So true. Thanks for highlighting these important findings from our #research. #EDS/#HSD #hEDS are truly multisystemic dise…
RT @JadeBarclay: #longCOVID is not just respiratory #MECFS is not just fatigue #POTS is not just heart #EDS is not just joints Eg, all the…
RT @JadeBarclay: #longCOVID is not just respiratory #MECFS is not just fatigue #POTS is not just heart #EDS is not just joints Eg, all the…
RT @JadeBarclay: #longCOVID is not just respiratory #MECFS is not just fatigue #POTS is not just heart #EDS is not just joints Eg, all the…
#longCOVID is not just respiratory #MECFS is not just fatigue #POTS is not just heart #EDS is not just joints Eg, all the diagnoses 12 months before/after EDS: https://t.co/4if01rwod1 Multisystemic conditions need non-siloed research/healthcare. We need
RT @ChronicWholenes: @JadeBarclay Did you see this paper from Dr. Reinhold? @DrEReinhold https://t.co/HDZ7h1k3qO
RT @ChronicWholenes: @JadeBarclay Did you see this paper from Dr. Reinhold? @DrEReinhold https://t.co/HDZ7h1k3qO
@JadeBarclay Did you see this paper from Dr. Reinhold? @DrEReinhold https://t.co/HDZ7h1k3qO
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
@SueMarsden6 This is relative to around 20% (male and female) in the neurotypical population. Although this article doesn't separate for Autism or ADHD diagnosis which could alter the results. https://t.co/pjyXaacvHF
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
Acabo de darme cuenta de que el tweet anterior no enlace a ningún sitio, dejo aquí el enlace del estudio sobre la prevalencia del #EhlersDanlos hiperlaxo y los desórdenes del espectro hiperlaxo (#HDS) en Gales https://t.co/a5hweR8suE