RT @littlehux: I've talked quite a bit about Ehler's Danlos this year because, as a multi-system disorder, it can affect people's whole bod…
RT @DrEReinhold: Thanks @SimonoffBob for summarising @JCDemmler et al research findings. The paper is not a long or particularly complex re…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @littlehux: I've talked quite a bit about Ehler's Danlos this year because, as a multi-system disorder, it can affect people's whole bod…
RT @littlehux: I've talked quite a bit about Ehler's Danlos this year because, as a multi-system disorder, it can affect people's whole bod…
RT @littlehux: I've talked quite a bit about Ehler's Danlos this year because, as a multi-system disorder, it can affect people's whole bod…
RT @littlehux: I've talked quite a bit about Ehler's Danlos this year because, as a multi-system disorder, it can affect people's whole bod…
I've talked quite a bit about Ehler's Danlos this year because, as a multi-system disorder, it can affect people's whole bodies and impact their lives. This paper proposes that the incidence is 1 in 500 people, and it's actually not that rare.
RT @DrEReinhold: Thanks @SimonoffBob for summarising @JCDemmler et al research findings. The paper is not a long or particularly complex re…
RT @DrEReinhold: Thanks @SimonoffBob for summarising @JCDemmler et al research findings. The paper is not a long or particularly complex re…
Thanks @SimonoffBob for summarising @JCDemmler et al research findings. The paper is not a long or particularly complex read. We'd love it to generate more #research ideas. Tell us what direction you would go next with this dataset! @H2OhTwist @BendyBrain
RT @JadeBarclay: In all the whirlwind about prevalence, the info about multisystemic impact has been overlooked. That's such big, beautiful…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @t7_linda: On Nov 05 the fantastic (& brilliant) @DrEReinhold dropped this long anticipated paper on prevalence of hEDS Conclusion : no…
RT @JadeBarclay: In all the whirlwind about prevalence, the info about multisystemic impact has been overlooked. That's such big, beautiful…
RT @t7_linda: On Nov 05 the fantastic (& brilliant) @DrEReinhold dropped this long anticipated paper on prevalence of hEDS Conclusion : no…
RT @JadeBarclay: In all the whirlwind about prevalence, the info about multisystemic impact has been overlooked. That's such big, beautiful…
RT @JadeBarclay: In all the whirlwind about prevalence, the info about multisystemic impact has been overlooked. That's such big, beautiful…
On Nov 05 the fantastic (& brilliant) @DrEReinhold dropped this long anticipated paper on prevalence of hEDS Conclusion : not rare. The community was ecstatic. No more refusals from dctrs to test for EDS because it's *too rare* https://t.co/VsarIls1al
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @JadeBarclay: In all the whirlwind about prevalence, the info about multisystemic impact has been overlooked. That's such big, beautiful…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @JadeBarclay: In all the whirlwind about prevalence, the info about multisystemic impact has been overlooked. That's such big, beautiful…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
Excited to read and share this with our members.
RT @RCCXTheory_MD: Yay!!!! https://t.co/WOwCGOKivZ
I've not had a reply to my question yet. @TheEDSociety please can you answer my question? https://t.co/t1nqeaNONp Here is the #EDS #hEDS #HSD #research link: https://t.co/mRTc4GnQ7r
Yay!!!!
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @JadeBarclay: In all the whirlwind about prevalence, the info about multisystemic impact has been overlooked. That's such big, beautiful…
RT @JadeBarclay: In all the whirlwind about prevalence, the info about multisystemic impact has been overlooked. That's such big, beautiful…
RT @JadeBarclay: In all the whirlwind about prevalence, the info about multisystemic impact has been overlooked. That's such big, beautiful…
RT @JadeBarclay: In all the whirlwind about prevalence, the info about multisystemic impact has been overlooked. That's such big, beautiful…
RT @JadeBarclay: In all the whirlwind about prevalence, the info about multisystemic impact has been overlooked. That's such big, beautiful…
RT @JadeBarclay: In all the whirlwind about prevalence, the info about multisystemic impact has been overlooked. That's such big, beautiful…
RT @JadeBarclay: In all the whirlwind about prevalence, the info about multisystemic impact has been overlooked. That's such big, beautiful…
RT @JadeBarclay: In all the whirlwind about prevalence, the info about multisystemic impact has been overlooked. That's such big, beautiful…
RT @JadeBarclay: In all the whirlwind about prevalence, the info about multisystemic impact has been overlooked. That's such big, beautiful…
RT @JadeBarclay: In all the whirlwind about prevalence, the info about multisystemic impact has been overlooked. That's such big, beautiful…
RT @JadeBarclay: In all the whirlwind about prevalence, the info about multisystemic impact has been overlooked. That's such big, beautiful…
RT @JadeBarclay: In all the whirlwind about prevalence, the info about multisystemic impact has been overlooked. That's such big, beautiful…
RT @JadeBarclay: In all the whirlwind about prevalence, the info about multisystemic impact has been overlooked. That's such big, beautiful…
In all the whirlwind about prevalence, the info about multisystemic impact has been overlooked. That's such big, beautiful, valuable data. Finally, hard evidence that EDS/JHS/HSD affects nervous system, mental health, gastro, cardiovascular systems. It's n
@ElleSENadvocate Worth sharing this too. Discussion. Paragraph 2. https://t.co/oHlxLY5MdQ
@cyberjennifer @raci2000 @Nigelgcole @BluesteinLinda @SimonoffBob @Laconic_doc @catedempsey @JeanneMcArdle @t7_linda @ZoeJay1 @BendyBrain @anameescapesme @OdyO11 @naturalhealthbl @EmLyWill @JadeBarclay No worries! There's enough misinformation flying aroun
RT @ZebraOrphans: The prevalence in Wales of EDS and JHS is ‘roughly 10 cases in a practice of 5000 patients.’ https://t.co/SUau5PDBHH #Rar…
@Deadly_Cyanide Hi Amanda - sorry I can't find the tweet I was going to reply to but here is Demmler et al paper on hEDS prevalence https://t.co/7Jiw97rXon
RT @Asher_Wolf: Heads up #RareDisease @rare2030 @eurordis: only some subtypes of Ehlers-Danlos Syndrome are rare. But Hypermobile Ehlers-Da…
RT @Asher_Wolf: Heads up #RareDisease @rare2030 @eurordis: only some subtypes of Ehlers-Danlos Syndrome are rare. But Hypermobile Ehlers-Da…
RT @Asher_Wolf: Heads up #RareDisease @rare2030 @eurordis: only some subtypes of Ehlers-Danlos Syndrome are rare. But Hypermobile Ehlers-Da…
Heads up #RareDisease @rare2030 @eurordis: only some subtypes of Ehlers-Danlos Syndrome are rare. But Hypermobile Ehlers-Danlos is common: read the brand new research https://t.co/hLy4FUoV7X https://t.co/S4WMpK2ZiS
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @JCDemmler: Great to see this paper published in @BMJ_Open today. So how rare are #hEDS and #HSD in routinely collected data and how do…
RT @emily_rj: It’s estimated now 1 in 500 (not 1 in 5,000) have Ehlers Danlos. It’s time medicine stopped excuses and gatekeeping in geneti…
It’s estimated now 1 in 500 (not 1 in 5,000) have Ehlers Danlos. It’s time medicine stopped excuses and gatekeeping in genetics, nephrology, neurology, heptaology, immunology, more. This is wholistic. It is real. Too many have died scared and alone. https:
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @mittalnimish: This latest nationwide study from Wales,UK reports the combined prevalence of Hypermobility Spectrum Disorder and hEDS to…
RT @jmrz: This is a HUGE deal for people like me stuck in diagnostic limbo due to doctors refusal to diagnose under the belief that this co…
@NeilCarrMPFT @mpftnhs @ShropCommHealth Can you tell me more about this please? Anything you can do to help those with #EhlersDanlosSyndrome? See the research from @DrEReinhold & @JCDemmler https://t.co/WhpMRRr2aa
RT @nerdymedzebra: Prevalence of *DIAGNOSED!* hEDS/HSD: 1:500... #NotRare! https://t.co/OdcBVaGn1f
RT @briannasbell: Check it out! It’s not just a hypothesis anymore- Ehlers Danlos isn’t rare! #EDS #NotRare https://t.co/GzI2l4RlUw
RT @emily_baumbach: 1 in 500 is #NotRare! Thank you Emma for doing this research! https://t.co/TVIH7FYwrz
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @mittalnimish: This latest nationwide study from Wales,UK reports the combined prevalence of Hypermobility Spectrum Disorder and hEDS to…
RT @mittalnimish: This latest nationwide study from Wales,UK reports the combined prevalence of Hypermobility Spectrum Disorder and hEDS to…
RT @mittalnimish: This latest nationwide study from Wales,UK reports the combined prevalence of Hypermobility Spectrum Disorder and hEDS to…
RT @DrEReinhold: Ok, an hour late, but here it is! @JCDemmler (and my) paper on #EDS prevalence and multisystemic effects. #NotRare http…
RT @DrEReinhold: Here it is! The #research you've all been waiting for by @JCDemmler @SwanseaUni (& me) Thanks to @BMJ_Open #NotRare #EDS @…
RT @jmrz: This is a HUGE deal for people like me stuck in diagnostic limbo due to doctors refusal to diagnose under the belief that this co…
RT @mittalnimish: This latest nationwide study from Wales,UK reports the combined prevalence of Hypermobility Spectrum Disorder and hEDS to…
RT @mittalnimish: This latest nationwide study from Wales,UK reports the combined prevalence of Hypermobility Spectrum Disorder and hEDS to…
RT @HMSACharity: Eagerly anticipated, the evidence is in. BOOM: “For 86% of the patients, the delay in diagnosis was considered responsibl…
RT @mittalnimish: This latest nationwide study from Wales,UK reports the combined prevalence of Hypermobility Spectrum Disorder and hEDS to…
RT @mittalnimish: This latest nationwide study from Wales,UK reports the combined prevalence of Hypermobility Spectrum Disorder and hEDS to…